Life after NJH

We want to thank you all for praying for us and supporting us. You have helped us get through our toughest times! Titus playing in the fort mommy made. Our lives have changed so much since Denver. Titus’ life has changed in so many ways!! As I’m (Mariya) writing this, Titus is on the floor […]

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Last night Titus slept well again. He woke up once, but fell back asleep on his own. I woke him up at 6:45 to start our morning routine. His skin looked good this morning, and even his face was better. Last night we had tried no head wrap, and that seemed to work well. We […]

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It’s hard to believe tomorrow is our last day here. It has been so nice working with many doctors and nurses who understand Titus’ condition and have so much experience with it. Today we said goodbye to Titus’ nurse Emily. She was his nurse everyday except one, and tomorrow is her day off. There is […]

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National Jewish Health Pediatric Eczema Program, Day 8

Titus slept the ENTIRE night last night!! We are very thankful. I had to wake him up at 6 am so we could get his bath and wet wraps done in time to take him out of his wraps by 9 am. Our nurse Emily wanted to get an early start on food challenges today. […]

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National Jewish Health Pediatric Eczema Program, Day 7

Titus slept very well last night. He woke up a few times, but not until around 6 am, and he went right back to sleep. This is absolutely amazing compared to how he was sleeping at home. It seemed like we would be up half the night, and we were very sleep deprived. Titus has […]

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National Jewish Health Atopic Dermatitis Program, Day 6

Just a quick note before the main post about today: Titus is much, much better than when we came here. We are very thankful. He can now play by himself while Mariya and I do other things – we don’t have to constantly stop him from scratching. It’s also much easier to feed him – […]

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National Jewish Health Eczema Program, Sunday

Last night went pretty well for Titus and I – he woke up about 3 times but went back to sleep pretty nicely. However, Charlie was tossing and turning and keeping Mariya up most of the night. Mariya got up to get Titus’ morning bath started about 7:30 so we could go to church, but […]

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National Jewish Health, Saturday

We get the weekend off from the hospital. It is nice to have a little break, but we are excited to start food challenges Monday. Last night went pretty well, although we did forget to get head wrap supplies from the hospital. Luckily we had one wrap from home, plus a ski cap we could […]

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National Jewish Heath – Day 5

Happy Valentine’s Day! Today I (Matthew) got up at 6:30 and snuck out of the room where I had been sleeping with Titus. Hoping he would not wake up, I headed for the store to pick up Valentine’s Day flowers and grape juice for Mariya. The flowers here have outrageous prices. We didn’t have to […]

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Last night was a good night! Titus only woke up one time, and I was able to get him back to sleep quickly without getting Mariya to nurse him. We’re hoping he sleeps all night tonight. Today was an easier day. We were planning to be at the hospital by 8:30 am, which would mean […]

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